Limb girdle muscular dystrophy

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What is limb girdle muscular dystrophy?

Limb-girdle muscular dystrophy is a term for a group of diseases that cause muscle weakness and wasting in the arms and legs. The muscles most affected are the muscles of the shoulders, upper arms, pelvic area, and thighs.

Common symptoms reported by people with limb girdle muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with limb girdle muscular dystrophy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with limb girdle muscular dystrophy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with limb girdle muscular dystrophy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with limb girdle muscular dystrophy, who reported starting treatments within the last 5 years.
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Who has limb girdle muscular dystrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 4
30s 9
40s 4
50s 10
60s 4
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 2
30-39 years 1
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 18
Female 19

Types
Condition Types Proportion # of patients
LGMD1A 0
LGMD1B 1
LGMD1C 0
LGMD1D 0
LGMD1E (Desmin myopathy) 0
LGMD1F 1
LGMD1H 0
LGMD2A (Calpainopathy) 1
LGMD2B (Dysferlinopathy) 5
LGMD2C 0
LGMD2D 1
LGMD2E 0
LGMD2F 0
LGMD2G 1
LGMD2H 0
LGMD2I 7
LGMD2J 0
LGMD2K 1
LGMD2L 2
LGMD2M 0
LGMD2N 0
LGMD2O 0
LGMD2Q 0
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 1

These charts show data from LGMD patients who have completed their condition history
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