Angiomyolipomatosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is Angiomyolipomatosis?

Angiomyolipomatosis are multiple non cancerous tumors of found on kidneys.

Common symptoms reported by people with Angiomyolipomatosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Angiomyolipomatosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Afinitor)
Type
Prescription Drug
How many have tried
1
Tried for
Angiomyolipomatosis (1)

Data from patients with Angiomyolipomatosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Angiomyolipomatosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Afinitor)
Perceived effectiveness
for Angiomyolipomatosis (1 evaluation)
Side effects
Hair loss
How many evaluations
1
Tried for
Angiomyolipomatosis (1)

Data from patients with Angiomyolipomatosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Angiomyolipomatosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 0
40s 0
50s 0
60s 0
70+ 0

Sex

Distribution of sex

100% Female
0% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from Angiomyolipomatosis patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Angiomyolipomatosis through your profile, those stories and data appear here too.

Got a question about living with Angiomyolipomatosis? Members in the forum might have the answers.