Pulmonary fibrosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Bryan explains in this video.

What is Pulmonary fibrosis?

Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.

Common symptoms reported by people with Pulmonary fibrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Pulmonary fibrosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Homozon Oxygen Therapy)
Type
Prescription Drug
How many have tried
1,032
Check to add this treatment to your profile
Treatment name(s)

(Esbriet)
Type
Prescription Drug
How many have tried
281
Check to add this treatment to your profile
Treatment name(s)

(Ofev)
Type
Prescription Drug
How many have tried
145
Check to add this treatment to your profile
Treatment name(s)

(GNC N-Acetyl Cysteine)
Type
Over the Counter Drug
How many have tried
99
Check to add this treatment to your profile
Treatment name(s)
Type
Physical Therapy
How many have tried
99
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
54
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
35
Check to add this treatment to your profile
Treatment name(s)

(VATS Lung Biopsy)
Type
Procedures
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
17
Check to add this treatment to your profile
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
12

Data from patients with Pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Pulmonary fibrosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Homozon Oxygen Therapy)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (239 evaluations)
Side effects
Dry nose Nosebleeds 23 more
How many evaluations
249
Check to add this treatment to your profile
Treatment name(s)

(Esbriet)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (159 evaluations)
Side effects
Decreased appetite Sensitivity to sunlight 48 more
How many evaluations
165
Check to add this treatment to your profile
Treatment name(s)

(Ofev)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (104 evaluations)
Side effects
Diarrhea Decreased appetite 30 more
How many evaluations
104
Check to add this treatment to your profile
Treatment name(s)

(GNC N-Acetyl Cysteine)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (28 evaluations)
Side effects
Heartburn Hiccups (hiccoughs) when starting to eat/drink 2 more
How many evaluations
32
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (33 evaluations)
Side effects
Shortness of breath with exertion Tiredness 4 more
How many evaluations
35
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (40 evaluations)
Side effects
Weight gain Hair loss 39 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (15 evaluations)
Side effects
Hair loss Iron Deficiency Anemia 6 more
How many evaluations
19
Check to add this treatment to your profile
Treatment name(s)

(VATS Lung Biopsy)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (5 evaluations)
Side effects
Hospitalization Allergic reaction to patch adhesive 2 more
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (19 evaluations)
Side effects
Hypertension Migraine headaches 5 more
How many evaluations
22
Check to add this treatment to your profile
Treatment name(s)

(CellCept)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (3 evaluations)
Side effects
Fatigue Mild Depression 3 more
How many evaluations
10

Data from patients with Pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Pulmonary fibrosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 80
30s 195
40s 408
50s 940
60s 1,785
70+ 2,662

Sex

Distribution of sex

51% Female
49% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 19
30-39 years 54
40-49 years 159
50-59 years 354
60-69 years 406
70+ years 217

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,792
Not Diagnosed 102

These charts show data from PF patients who have completed their condition history
Last updated: