Pulmonary fibrosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Bryan explains in this video.

What is Pulmonary fibrosis?

Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.

Common symptoms reported by people with Pulmonary fibrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Pulmonary fibrosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
857
Check to add this treatment to your profile
Treatment name(s)

(Esbriet)
Type
Prescription Drug
How many have tried
251
Check to add this treatment to your profile
Treatment name(s)

(GNC N-Acetyl Cysteine)
Type
Over the Counter Drug
How many have tried
105
Check to add this treatment to your profile
Treatment name(s)
Type
Physical Therapy
How many have tried
85
Check to add this treatment to your profile
Treatment name(s)

(Ofev)
Type
Prescription Drug
How many have tried
84
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
58
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
40
Check to add this treatment to your profile
Treatment name(s)

(VATS Lung Biopsy)
Type
Procedures
How many have tried
15
Check to add this treatment to your profile
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
12
Check to add this treatment to your profile
Treatment name(s)

(Pred Forte)
Type
Prescription Drug
How many have tried
11

Data from patients with Pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Pulmonary fibrosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (145 evaluations)
Side effects
Dry nose Runny nose (rhinorrhea) 16 more
How many evaluations
149
Check to add this treatment to your profile
Treatment name(s)

(Esbriet)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (119 evaluations)
Side effects
Decreased appetite Indigestion 34 more
How many evaluations
124
Check to add this treatment to your profile
Treatment name(s)

(GNC N-Acetyl Cysteine)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (21 evaluations)
Side effects
Hiccups (hiccoughs) when starting to eat/drink Nausea 1 more
How many evaluations
22
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (18 evaluations)
Side effects
Shortness of breath with exertion Breathing difficulty 2 more
How many evaluations
20
Check to add this treatment to your profile
Treatment name(s)

(Ofev)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (50 evaluations)
Side effects
Decreased appetite Diarrhea 8 more
How many evaluations
50
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (27 evaluations)
Side effects
Weight gain Hair loss 47 more
How many evaluations
43
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (16 evaluations)
Side effects
Nausea and vomiting Drowsiness 8 more
How many evaluations
18
Check to add this treatment to your profile
Treatment name(s)

(VATS Lung Biopsy)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (3 evaluations)
Side effects
Allergic reaction to patch adhesive Hospitalization 1 more
How many evaluations
4
Check to add this treatment to your profile
Treatment name(s)

(CellCept)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (3 evaluations)
Side effects
Fatigue Mild Depression 3 more
How many evaluations
9
Check to add this treatment to your profile
Treatment name(s)

(Pred Forte)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (3 evaluations)
Side effects
Chronic Hyperglycemia Elevated blood pressure 2 more
How many evaluations
5

Data from patients with Pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Pulmonary fibrosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 55
30s 85
40s 283
50s 771
60s 1,649
70+ 2,205

Sex

Distribution of sex

47% Female
53% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 13
30-39 years 36
40-49 years 136
50-59 years 293
60-69 years 333
70+ years 192

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,470
Not Diagnosed 80

These charts show data from PF patients who have completed their condition history
Last updated: