Pulmonary fibrosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Bryan explains in this video.

What is Pulmonary fibrosis?

Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.

Common symptoms reported by people with Pulmonary fibrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Pulmonary fibrosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Homozon Oxygen Therapy)
Type
Prescription Drug
How many have tried
1,047
Check to add this treatment to your profile
Treatment name(s)

(Esbriet)
Type
Prescription Drug
How many have tried
284
Check to add this treatment to your profile
Treatment name(s)

(Ofev)
Type
Prescription Drug
How many have tried
150
Check to add this treatment to your profile
Treatment name(s)
Type
Physical Therapy
How many have tried
101
Check to add this treatment to your profile
Treatment name(s)

(GNC N-Acetyl Cysteine)
Type
Over the Counter Drug
How many have tried
98
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
56
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
34
Check to add this treatment to your profile
Treatment name(s)

(VATS Lung Biopsy)
Type
Procedures
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
17
Check to add this treatment to your profile
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
12

Data from patients with Pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Pulmonary fibrosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Homozon Oxygen Therapy)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (251 evaluations)
Side effects
Dry nose Nosebleeds 25 more
How many evaluations
263
Check to add this treatment to your profile
Treatment name(s)

(Esbriet)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (161 evaluations)
Side effects
Decreased appetite Sensitivity to sunlight 50 more
How many evaluations
167
Check to add this treatment to your profile
Treatment name(s)

(Ofev)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (109 evaluations)
Side effects
Diarrhea Decreased appetite 31 more
How many evaluations
109
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (36 evaluations)
Side effects
Shortness of breath with exertion Tiredness 5 more
How many evaluations
38
Check to add this treatment to your profile
Treatment name(s)

(GNC N-Acetyl Cysteine)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (28 evaluations)
Side effects
Heartburn Hiccups (hiccoughs) when starting to eat/drink 2 more
How many evaluations
32
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (42 evaluations)
Side effects
Weight gain Hair loss 41 more
How many evaluations
59
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (12 evaluations)
Side effects
Dry mouth Hair loss 6 more
How many evaluations
17
Check to add this treatment to your profile
Treatment name(s)

(VATS Lung Biopsy)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (5 evaluations)
Side effects
Hospitalization Allergic reaction to patch adhesive 2 more
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (19 evaluations)
Side effects
High Blood Pressure (Hypertension) Migraine headaches 5 more
How many evaluations
22
Check to add this treatment to your profile
Treatment name(s)

(CellCept)
Perceived effectiveness
for Idiopathic Pulmonary Fibrosis (3 evaluations)
Side effects
Fatigue Mild Depression 3 more
How many evaluations
10

Data from patients with Pulmonary fibrosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Pulmonary fibrosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 82
30s 204
40s 425
50s 956
60s 1,783
70+ 2,704

Sex

Distribution of sex

51% Female
49% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 21
30-39 years 58
40-49 years 160
50-59 years 358
60-69 years 412
70+ years 215

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,813
Not Diagnosed 102

These charts show data from PF patients who have completed their condition history
Last updated: