Pulmonary fibrosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as member Bryan explains in this video.
What is pulmonary fibrosis?
Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.
Common symptoms reported by people with pulmonary fibrosis
Common symptoms
How bad it is
What people are taking for it
Common symptom
Loss of sense of smell (anosmia)
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for pulmonary fibrosis
Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
8
Tried for
idiopathic pulmonary fibrosis
(23)
hypersensitivity pneumonitis
(1)
Type
Prescription Drug
How many have tried
49
Tried for
idiopathic pulmonary fibrosis
(5)
pulmonary fibrosis
(1)
Treatment name(s)
Pulmonary Rehabilitation
Type
Physical Therapy
How many have tried
128
Tried for
idiopathic pulmonary fibrosis
(3)
Type
Prescription Drug
How many have tried
88
Tried for
hypersensitivity pneumonitis
(1)
idiopathic pulmonary fibrosis
(1)
Data from patients with pulmonary fibrosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with pulmonary fibrosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for idiopathic pulmonary fibrosis (14 evaluations)
Total evaluations
14
Tried for
idiopathic pulmonary fibrosis
(23)
hypersensitivity pneumonitis
(1)
Perceived effectiveness
for idiopathic pulmonary fibrosis (5 evaluations)
Side effects
dry nasal passages
sore nose
Total evaluations
5
Tried for
idiopathic pulmonary fibrosis
(7)
Perceived effectiveness
for idiopathic pulmonary fibrosis (5 evaluations)
Side effects
decreased appetite
Total evaluations
5
Tried for
idiopathic pulmonary fibrosis
(5)
pulmonary fibrosis
(1)
Treatment name(s)
Pulmonary Rehabilitation
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic pulmonary fibrosis
(3)
Perceived effectiveness
for hypersensitivity pneumonitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
hypersensitivity pneumonitis
(1)
idiopathic pulmonary fibrosis
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic pulmonary fibrosis
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic pulmonary fibrosis
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with pulmonary fibrosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has pulmonary fibrosis on PatientsLikeMe?
- 4 new patients joined this month
- 7,359 say PF is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 5 | |
| 20s | 53 | |
| 30s | 235 | |
| 40s | 542 | |
| 50s | 959 | |
| 60s | 1,610 | |
| 70+ | 4,634 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 18 | |
| 20-29 years | 28 | |
| 30-39 years | 65 | |
| 40-49 years | 181 | |
| 50-59 years | 397 | |
| 60-69 years | 452 | |
| 70+ years | 255 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3,570 | |
| Female | 4,607 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2,080 | |
| Not Diagnosed | 144 |
These charts show data from PF patients who have completed their condition history
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