Proteus syndrome
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What is Proteus syndrome?
Proteus syndrome is characterized as an overgrowth of skin, bones, and soft tissue. The overgrowth is progressive and usually asymmetric.
Common symptoms reported by people with Proteus syndrome
Treatments taken by people with Proteus syndrome
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Got a question about living with Proteus syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Proteus syndrome
Let’s build this page together! When you share what it’s like to have Proteus syndrome through your profile, those stories and data appear here too.
Got a question about living with Proteus syndrome? Members in the forum might have the answers.
Who has Proteus syndrome on PatientsLikeMe?
- 4 patients have this condition
- 0 new patients joined this month
- 1 say Proteus syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 1 | |
| 30s | 0 | |
| 40s | 0 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 3 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 0 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have Proteus syndrome through your profile, those stories and data appear here too.
Got a question about living with Proteus syndrome? Members in the forum might have the answers.