What is Proteus syndrome?
Proteus syndrome is characterized as an overgrowth of skin, bones, and soft tissue. The overgrowth is progressive and usually asymmetric.
How do members experience Proteus syndrome?
Top 5 symptoms reported by people with Proteus syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Proteus syndrome*
Who has Proteus syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 0 | |
| 50s | 0 | |
| 60s | 1 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 3 |