Paget's disease of bone

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What is Paget's disease of bone?

Paget disease of bone, also called osteitis deformans, is a chronic nonmetabolic bone disorder that is characterized by increased bone resorption, bone formation and remodeling.

Common symptoms reported by people with Paget's disease of bone

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Paget's disease of bone

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Fosamax)
Type
Prescription Drug
How many have tried
1
Tried for
Paget's disease of bone (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with Paget's disease of bone, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Paget's disease of bone

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Fosamax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Paget's disease of bone (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Paget's disease of bone, who reported starting treatments within the last 5 years.
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Who has Paget's disease of bone on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 0
40s 4
50s 5
60s 7
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 1
30-39 years 2
40-49 years 4
50-59 years 3
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 23

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 3

These charts show data from Paget's disease of bone patients who have completed their condition history
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