What is hemophagocytic lymphohistiocytosis?
Hemophagocytic lymphohistiocytosis is a disorder characterized as an overproduction of white blood cells (lymphocytes and histiocytes). Excessive amounts of white blood cells build up and may damage organs.
How do members experience hemophagocytic lymphohistiocytosis?
Top 5 symptoms reported by people with hemophagocytic lymphohistiocytosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for hemophagocytic lymphohistiocytosis*
Who has hemophagocytic lymphohistiocytosis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 2 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 2 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 4 | |
| Female | 3 |