Hemophagocytic lymphohistiocytosis

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What is hemophagocytic lymphohistiocytosis?

Hemophagocytic lymphohistiocytosis is a disorder characterized as an overproduction of white blood cells (lymphocytes and histiocytes). Excessive amounts of white blood cells build up and may damage organs.

Common symptoms reported by people with hemophagocytic lymphohistiocytosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with hemophagocytic lymphohistiocytosis

No data

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Compare treatments taken by people with hemophagocytic lymphohistiocytosis

No data

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Got a question about living with hemophagocytic lymphohistiocytosis? Members in the forum might have the answers.

Who has hemophagocytic lymphohistiocytosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 2
40s 0
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

43% Female
57% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from hemophagocytic lymphohistiocytosis patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have hemophagocytic lymphohistiocytosis through your profile, those stories and data appear here too.

Got a question about living with hemophagocytic lymphohistiocytosis? Members in the forum might have the answers.