Coffin-Lowry syndrome

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What is Coffin-Lowry syndrome?

Coffin-Lowry syndrome is a genetic condition characterized by head, facial, and bone abnormalities, developmental delay, short stature, and decreased muscle tone.

Common symptoms reported by people with Coffin-Lowry syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Coffin-Lowry syndrome

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Got a question about living with Coffin-Lowry syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Coffin-Lowry syndrome

Let’s build this page together! When you share what it’s like to have Coffin-Lowry syndrome through your profile, those stories and data appear here too.

Got a question about living with Coffin-Lowry syndrome? Members in the forum might have the answers.

Who has Coffin-Lowry syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 0
30s 1
40s 0
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 2

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from Coffin-Lowry syndrome patients who have completed their condition history
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Let’s build this page together! When you share what it’s like to have Coffin-Lowry syndrome through your profile, those stories and data appear here too.

Got a question about living with Coffin-Lowry syndrome? Members in the forum might have the answers.