Scleroderma en coupe de sabre

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What is scleroderma en coupe de sabre?

Scleroderma en Coupe de Sabre is a subtype of scleroderma, a rare chronic autoimmune disease characterized by hardening (fibrosis) and vascular abnormalities. en Coupe de Sabre affects the forehead, it appears as an indented, vertical, colorless, line of skin on the forehead.

Common symptoms reported by people with scleroderma en coupe de sabre

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with scleroderma en coupe de sabre

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Minocin)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Centrum Multivitamin)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Nucynta)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with scleroderma en coupe de sabre, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with scleroderma en coupe de sabre

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Minocin)
Perceived effectiveness
for scleroderma en coupe de sabre (1 evaluation)
Side effects
pressure headaches
Total evaluations
1
Treatment name(s)

(Centrum Multivitamin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Deltasone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Rituxan)
Perceived effectiveness
for scleroderma en coupe de sabre (1 evaluation)
Side effects
nausea
Total evaluations
1
Treatment name(s)

(Nucynta)
Perceived effectiveness
for pain (1 evaluation)
Side effects
hyperactivity
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with scleroderma en coupe de sabre, who reported starting treatments within the last 5 years.
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Who has scleroderma en coupe de sabre on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 2
40s 4
50s 4
60s 4
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 16

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1

These charts show data from scleroderma en coupe de sabre patients who have completed their condition history
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