Duane syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Duane syndrome?

Duane's syndrome is a rare congenital condition where the movement of the eye muscles are impaired. It is characterized as a limited ability to control the movement of the eyes inward toward the nose and/or outward toward the ears.

Common symptoms reported by people with Duane syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Duane syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Jakafi)
Type
Prescription Drug
How many have tried
1
Tried for
Duane syndrome (1)

Data from patients with Duane syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Duane syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Jakafi)
Perceived effectiveness
for Duane syndrome (1 evaluation)
Side effects
headaches tension headache
Total evaluations
3
Tried for
Duane syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Duane syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Duane syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 1
40s 5
50s 2
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from Duane syndrome patients who have completed their condition history
Last updated: