Hypoplastic right heart syndrome

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What is hypoplastic right heart syndrome?

Hypoplastic right heart syndrome is a rare type of congenital heart disease. It occurs when parts of the right side of the heart are underdeveloped, which includes the pulmonary valve, right ventricle, tricuspid valve and pulmonary artery. Symptoms include a bluish tint to the lips and skin.

Common symptoms reported by people with hypoplastic right heart syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hypoplastic right heart syndrome

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Compare treatments taken by people with hypoplastic right heart syndrome

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Who has hypoplastic right heart syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 0
40s 2
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from hypoplastic right heart syndrome patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have hypoplastic right heart syndrome through your profile, those stories and data appear here too.

Got a question about living with hypoplastic right heart syndrome? Members in the forum might have the answers.