Familial amyloidosis

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What is familial amyloidosis?

Amyloidosis is a group of diseases in which protein is deposited locally in specific organs or throughout the body. Hereditary amyloidosis is an inherited form passed down in families that often affects the central nervous system and kidneys.

Common symptoms reported by people with familial amyloidosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with familial amyloidosis

Let’s build this page together! When you share what it’s like to have familial amyloidosis through your profile, those stories and data appear here too.

Got a question about living with familial amyloidosis? Members in the forum might have the answers.

Compare treatments taken by people with familial amyloidosis

Let’s build this page together! When you share what it’s like to have familial amyloidosis through your profile, those stories and data appear here too.

Got a question about living with familial amyloidosis? Members in the forum might have the answers.

Who has familial amyloidosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 1
40s 2
50s 3
60s 2
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 0
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 7
Female 12

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 3

These charts show data from familial amyloidosis patients who have completed their condition history
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