Lung transplant

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is lung transplant?

Lung transplantation is an option for patients who have respiratory insufficiency or failure and who remain at life-threatening risk despite optimal medical treatment. Single and double lung procedures are about equally common.

Common symptoms reported by people with lung transplant

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with lung transplant

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prograf)
Type
Prescription Drug
How many have tried
7
Tried for
lung transplant (7)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
3
Tried for
lung transplant (3)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
2
Tried for
lung transplant (2)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
2
Tried for
lung transplant (2)
Treatment name(s)

(Tessalon Perles)
Type
Prescription Drug
How many have tried
1
Tried for
Cough (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
lung transplant (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)
Type
Over the Counter Drug
How many have tried
1
Tried for
Cough (1)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with lung transplant, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with lung transplant

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prograf)
Perceived effectiveness
for lung transplant (2 evaluations)
Side effects
Tiredness
Total evaluations
2
Tried for
lung transplant (7)
Treatment name(s)

(Imuran)
Perceived effectiveness
for lung transplant (1 evaluation)
Side effects
Total evaluations
1
Tried for
lung transplant (3)
Treatment name(s)

(CellCept)
Perceived effectiveness
for lung transplant (1 evaluation)
Side effects
Mood swings Tremor(s)
Total evaluations
1
Tried for
lung transplant (2)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for lung transplant (1 evaluation)
Side effects
Insomnia
Total evaluations
1
Tried for
lung transplant (2)
Treatment name(s)

(Tessalon Perles)
Perceived effectiveness
for Cough (1 evaluation)
Side effects
Total evaluations
2
Tried for
Cough (1)
Treatment name(s)
Perceived effectiveness
for lung transplant (1 evaluation)
Side effects
Coughing up blood (hemoptysis)
Total evaluations
1
Tried for
lung transplant (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Anxious mood (1)
Treatment name(s)
Perceived effectiveness
for Cough (1 evaluation)
Side effects
Total evaluations
1
Tried for
Cough (1)
Treatment name(s)

(Benadryl)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lung transplant, who reported starting treatments within the last 5 years.
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Who has lung transplant on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 19
30s 62
40s 71
50s 131
60s 209
70+ 89
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

52% Female
48% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 1

These charts show data from lung transplant patients who have completed their condition history
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