Sturge-Weber syndrome

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What is Sturge-Weber syndrome?

Sturge Weber syndrome, a congenital disorder, is characterized by the presence of a port-wine birthmark on one or both sides of the face. Additional clinical manifestations may include seizures, glaucoma, and cognitive deficits.

Common symptoms reported by people with Sturge-Weber syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sturge-Weber syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Trance Music)
Type
Other
How many have tried
1
Tried for
stress (1)

Data from patients with Sturge-Weber syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sturge-Weber syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Trance Music)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
stress (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sturge-Weber syndrome, who reported starting treatments within the last 5 years.
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Who has Sturge-Weber syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 3
30s 3
40s 3
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 8

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 3

These charts show data from Sturge-Weber syndrome patients who have completed their condition history
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