Cogan syndrome

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What is Cogan syndrome?

Cogan's syndrome is a rare, rheumatic disease characterized by inflammation of the ears and eyes. Cogan's syndrome can lead to vision difficulty, hearing loss and dizziness. The condition may also be associated with blood-vessel inflammation (called vasculitis).

Common symptoms reported by people with Cogan syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Cogan syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
1
Tried for
Cogan syndrome (1)

Data from patients with Cogan syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Cogan syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Rituxan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Cogan syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Cogan syndrome, who reported starting treatments within the last 5 years.
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Who has Cogan syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 2
50s 3
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 2
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 1

These charts show data from Cogan syndrome patients who have completed their condition history
Last updated:
No data

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