Emphysema

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is emphysema?

Emphysema is a long-term, progressive disease of the lungs that primarily causes shortness of breath due to over-inflation of the air sacs in the lung. Emphysema is included in a group of diseases called chronic obstructive pulmonary disease or COPD (pulmonary refers to the lungs).

Common symptoms reported by people with emphysema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with emphysema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Homozon Oxygen Therapy)
Type
Prescription Drug
How many have tried
8
Tried for
emphysema (8)
Treatment name(s)

(Spiriva HandiHaler)
Type
Prescription Drug
How many have tried
6
Tried for
emphysema (6)
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
5
Tried for
emphysema (5)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
4
Tried for
emphysema (4)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
2
Tried for
emphysema (2)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Flovent HFA)
Type
Prescription Drug
How many have tried
2
Tried for
emphysema (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2)
Treatment name(s)

(Ipratropium Inhalant)
Type
Prescription Drug
How many have tried
2
Tried for
emphysema (2)
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)

Data from patients with emphysema, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with emphysema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Homozon Oxygen Therapy)
Perceived effectiveness
for emphysema (4 evaluations)
Side effects
Total evaluations
5
Tried for
emphysema (8)
Treatment name(s)

(Spiriva HandiHaler)
Perceived effectiveness
for emphysema (8 evaluations)
Side effects
Raspy voice
Total evaluations
8
Tried for
emphysema (6)
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
for emphysema (7 evaluations)
Side effects
Shakiness Shaky hands
Total evaluations
9
Tried for
emphysema (5)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for emphysema (1 evaluation)
Side effects
Total evaluations
1
Tried for
emphysema (4)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for emphysema (2 evaluations)
Side effects
Total evaluations
2
Tried for
emphysema (2)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (2)
Treatment name(s)

(Flovent HFA)
Perceived effectiveness
for emphysema (1 evaluation)
Side effects
Total evaluations
1
Tried for
emphysema (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (2)
Treatment name(s)

(Ipratropium Inhalant)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
emphysema (2)
Treatment name(s)

(Mobic)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Stomach pain
Total evaluations
3
Tried for
Pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with emphysema, who reported starting treatments within the last 5 years.
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Who has emphysema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 7
40s 52
50s 71
60s 124
70+ 74
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 7
30-39 years 31
40-49 years 43
50-59 years 47
60-69 years 19
70+ years 2

Sex

Distribution of sex

68% Female
32% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 200
Not Diagnosed 5

These charts show data from emphysema patients who have completed their condition history
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