What is Botulinum Toxin Type A?

Category: Prescription Drugs

Most popular types: Botox Botox Cosmetic

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Botulinum Toxin Type A is a neuromuscular blocker agent. It is used to treat various types of dystonia (neurological movement disorders); for blepharospasm and strabismus; for primary axillary hyperhidrosis (excessive perspiration); and it is also used for cosmetic purposes.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 88 57
Stiffness/Spasticity 62 51
Dystonia 39 36
Excess saliva 24 12
Bladder problems 18 22
Migraine 15 10

Show all 104 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 12
Moderate 28
Mild 71
None 145

Commonly reported side effects and conditions associated with Botulinum Toxin Type A

Side effect Patients
Injection site pain 8
Swallowing difficulty (dysphagia) 5
Pain 4
Drooping eyelid (ptosis) 3
Migraine headaches 3
Muscle pain 3

Show all 83 reported side effects

Dosages

Based on patients currently taking Botulinum Toxin Type A

Dosage Patients
100 units every 3 months 16
1 other every 3 months 6
100 units every 12 weeks 4
1 app every 3 months 2
200 units every 3 months 2
every 3 months 2
1 intl units every 3 months 1
1 app every 12 weeks 1
2 app every 3 months 1
3 other every 3 months 1

See all 47 dosages

Why patients stopped taking Botulinum Toxin Type A

Multiple reasons could be selected

Reason Patients
Did not seem to work 58
Course of treatment ended 26
Other 23
Expense 18
Side effects too severe 15
Doctor's advice 10
Personal research 6
Change in health plan coverage 3
See all 125 patients who’ve stopped taking Botulinum Toxin Type A

Duration

Currently taking Botulinum Toxin Type A

Duration Patients
Less than 1 month 1
1 - 6 months 5
6 months - 1 year 8
1 - 2 years 14
2 - 5 years 30
5 - 10 years 14
10 years or more 3

Stopped taking Botulinum Toxin Type A

Duration Patients
Less than 1 month 49
1 - 6 months 25
6 months - 1 year 21
1 - 2 years 10
2 - 5 years 13
5 - 10 years 4
10 years or more 3
Adherence
Adherence Evaluations
Always 197
Usually 18
Sometimes 17
Never taken as prescribed 24
Burden
Burden Evaluations
Very hard to take 24
Somewhat hard to take 53
A little hard to take 77
Not at all hard to take 102
Cost per month
Cost per month Evaluations
$200+ 35
$100-199 18
$50-99 10
$25-49 4
< $25 68
Not specified 121

What people switch to and from

Patients started taking Botulinum Toxin Type A after stopping:

Treatment Patients
Sumatriptan (Imitrex) 4
Solifenacin (Vesicare) 3
Topiramate (Topamax) 3
Butalbital-acetaminophen-caffeine (Fioricet) 2
mirabegron (Myrbetriq) 2

Show all 22 treatments patients report switching from

Patients stopped taking Botulinum Toxin Type A and switched to:

Treatment Patients
Baclofen (Mylan-Baclofen) 1
Clonazepam (Klonopin) 1
Cortisone Injection 1
Diazepam (Valium) 1
Divalproex sodium (Depakote) 1

Show all 8 treatments patients report switching to

Last updated:

27 patient evaluations for Botulinum Toxin Type A

180 members have decided to share their profiles only with other members of PatientsLikeMe.

i'm a believer
11504 thumb
i'm a believer
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: moderate
Speech: none
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See i'm a believer's full Botulinum Toxin Type A history

Nov 1, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Side effects
    Severe (Burning pain at injection site, I couldn't bear weight on my leg., extreme tenderness along inner thigh for about 3 weeks, Pain in legs)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Cost: $100-199 monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

Oct 1, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Side effects
    Severe (Burning pain at injection site, extreme tenderness along inner thigh for about 3 weeks, Pain in legs)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: It initially was very effective but the last treatment left me unable to bear weight and extreme pain. I had to increase my muscle relaxant and am no longer taking Botox every 3 months. On Hold for now- will start again only if needed.
Cost: $100-199 monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

Jun 22, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Side effects
    Mild (Burning pain at injection site, extreme tenderness along inner thigh for about 3 weeks)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: I highly recommend this for severe rigidity and pain. It has really improved my quality of life. I will continue as long as I can afford to.
Cost: $100-199 monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

Jun 11, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Slight (for Stiffness/Spasticity)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: I definitely think it was well worth trying. Its effectiveness lasted nearly 3 months for me so it can be costly. If I hadn't tried it I would not be able to participate in the exercise program I am in and I think I wouldn't be very active mobility wise without it. Next week I will have my injections and am really looking forward to eat as I am back to constant back pain and my gait is becoming more rigid again. I am going to request a higher dosage hoping it will relax my leg even more this round.
Cost: $100-199 monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

May 9, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: This treatment is costly but definitely worth the money. It was a bit tender in the area injected for a couple weeks but other then that I was so happy with the ability to straighten my leg on my awakening in the morning without having to massage and exercise my leg. I actually was pain free in my lower back for about 6 weeks and even now have miniml discomfort.
Cost: $50-99 monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

Apr 11, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Side effects
    Mild (extreme tenderness along inner thigh for about 3 weeks)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: definitely worth having if you have considerable amount of rigidity and pain
Cost: $50-99 monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

Mar 20, 2009 (Started Mar 10, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As needed
Cost: $200+ monthly
Side effects: Burning pain at injection site, I couldn't bear weight on my leg., Pain in legs, extreme tenderness along inner thigh for about 3 weeks

  • 3 helpful marks
TomR
18887 thumb
TomR
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: mild
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See TomR's full Botulinum Toxin Type A history

Mar 1, 2011 (Started Sep 30, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Moderate (for Foot drop)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 units Every 3 months
Advice & Tips: the BOTOX worked for me. It really reduced the tightness and cramping in my calves and help with foot drop. I am now using AFO's to help with the foot drop and improve gait.

Jan 26, 2011 (Started Sep 30, 2009)

  • Effectiveness
    Slight (for Stiffness/Spasticity)
  • Effectiveness
    Moderate (for Foot drop)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 units Every 3 months
Advice & Tips: Got my shot yesterday, 4 in each calf, 100 mg each leg.

Nov 18, 2010 (Started Sep 30, 2009)

  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Effectiveness
    Major (for Foot drop)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 units Every 3 months
Advice & Tips: I can tell really start to tell when the three months is coming up. My calves are a lot more spastic, and I have a propensity to trip/fall more. The VA this last treatment in October. Kinda of frequed them out on how much botox I get. Previously I had been getting treatment at the Mellen Center at CCF. The cost of my care has taken me to the VA. I will see the Docs at the Mellen Center periodically.

Jul 28, 2010 (Started Sep 30, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Moderate (for Foot drop)
  • Side effects
    Mild
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 units Every 3 months
Advice & Tips: I had injections on 4/16/10. A little over 3 months. In the last three weeks or so I noticed increased foot drop and tripping. Falling 4 times in htat three weeks. Next treatment is scheculed for Oct 26th. Its been about 18 hours adn I see benefit already. Right calf (bad one) more jittery/crampy during shots-very bearable.

Apr 16, 2010 (Started Sep 30, 2009)

  • Effectiveness
    Moderate (for Stiffness/Spasticity)
  • Effectiveness
    Moderate (for Foot drop)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 units Every 3 months
Advice & Tips: This was my third treatment. The dosage was increased by a hundred units in each calf since the January 2010 treatment. 150left 250right. Walking was improved within a few hours.

  • 2 helpful marks
wormy72
927 thumb
wormy72
Sex: M
Data Quality: 0 stars
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I have:
Parkinson's

See wormy72's full Botulinum Toxin Type A history

Nov 16, 2009 (Started Jul 14, 2009)

  • Effectiveness
    Moderate (for Disordered muscle tension (dystonia))
  • Side effects
    Moderate (Burning sensation in muscle, Muscle aches, Injection site pain, Muscle weakness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: $200+ monthly
Side effects: Injection site pain, Burning sensation in muscle, Muscle aches, Muscle weakness

  • 1 helpful mark
Last updated:
Showing 3 of 27 patient evaluations for Botulinum Toxin Type A