"You have to have that place you can go where you can share with people, where they can allay some of those fears. PatientsLikeMe has been that for me."
Jackie, MS community member
"My zeal for knowledge in my condition and understanding of the way things seem to work in the clinical world can benefit others who are going through their own challenges."
John, ALS community member
"I found a treatment that worked well for others, and decided to go for it. I haven’t had a seizure since! Now my experience is helping new patients discover better options."
Letitia, epilepsy community member
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“Our brother Stephen was living with ALS and we thought, ‘there has to be a better way.’ There is. By sharing our experiences, we can all contribute new data that can accelerate research and help create better treatments. Our experiences can actually change medicine… for good.”
Jamie & Ben Heywood
Co-founders, PatientsLikeMe
News
Duke ALS Clinic and PatientsLikeMe Launch Virtual Trial for ALS Patients
The Duke ALS Clinic has completed enrollment in a virtual trial with PatientsLikeMe that is designed to test whether Lunasin, a peptide found in soy and some cereal grains, is helpful or harmful to ALS patients. The Lunasin Virtual Trial is the first study of the supplement in ALS patients and follows a review analyzing its potential to reverse ALS in ALSUntangled, a website for clinicians, patients and researchers to explore alternative treatments.
PatientsLikeMe Names George Parker Executive Vice President of Human Resources
In the newly-established role, the seasoned HR executive will oversee all aspects of human resources, with a focus on talent acquisition and development.
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