Vulvodynia

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What is vulvodynia?

Vulvodynia is a complex pain syndrome with unknown etiology, characterized by constant or intermittent generalized vulvar pain or localized burning sensations in the vestibule area when pressure is applied. Treatment is directed towards alleviating symptoms

Common symptoms reported by people with vulvodynia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for vulvodynia

Let’s build this page together! When you share what it’s like to have vulvodynia through your profile, those stories and data appear here too.

Got a question about living with vulvodynia? Members in the forum might have the answers.

Compare treatments taken by people with vulvodynia

Let’s build this page together! When you share what it’s like to have vulvodynia through your profile, those stories and data appear here too.

Got a question about living with vulvodynia? Members in the forum might have the answers.

Who has vulvodynia on PatientsLikeMe?

  • 0 new patients joined this month
  • 80 say vulvodynia is their primary condition

Age
Age Proportion # of patients
<20 5
20s 10
30s 48
40s 29
50s 33
60s 30
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 20
30-39 years 12
40-49 years 14
50-59 years 7
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 166

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 72
Not Diagnosed 18

These charts show data from vulvodynia patients who have completed their condition history
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