What is variegate porphyria?
Porphyrias are defined by the specific enzyme deficiency. Variegate porphyria, also known as mixed porphyria, exhibits characteristics of the two main types of porphyria including neurovisceral abnormalities of the acute porphyrias and skin photosensitivity seen in the cutaneous porphyrias.
How do members experience variegate porphyria?
Top 5 symptoms reported by people with variegate porphyria*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for variegate porphyria*
Who has variegate porphyria on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 3 | |
| 50s | 4 | |
| 60s | 3 | |
| 70+ | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 10 |