Variegate porphyria
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What is variegate porphyria?
Porphyrias are defined by the specific enzyme deficiency. Variegate porphyria, also known as mixed porphyria, exhibits characteristics of the two main types of porphyria including neurovisceral abnormalities of the acute porphyrias and skin photosensitivity seen in the cutaneous porphyrias.
Common symptoms reported by people with variegate porphyria
Treatments taken by people for variegate porphyria
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Compare treatments taken by people with variegate porphyria
Let’s build this page together! When you share what it’s like to have variegate porphyria through your profile, those stories and data appear here too.
Got a question about living with variegate porphyria? Members in the forum might have the answers.
Who has variegate porphyria on PatientsLikeMe?
- 0 new patients joined this month
- 9 say variegate porphyria is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 4 | |
| 50s | 4 | |
| 60s | 3 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 2 | |
| 30-39 years | 3 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 9 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 6 | |
| Not Diagnosed | 0 |