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Porphyrias are defined by the specific enzyme deficiency. Variegate porphyria, also known as mixed porphyria, exhibits characteristics of the two main types of porphyria including neurovisceral abnormalities of the acute porphyrias and skin photosensitivity seen in the cutaneous porphyrias.
How do members experience variegate porphyria?
Top 5 symptoms reported by people with variegate porphyria*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for variegate porphyria*
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Porphyrias are defined by the specific enzyme deficiency. Variegate porphyria, also known as mixed porphyria, exhibits characteristics of the two main types of porphyria including neurovisceral abnormalities of the acute porphyrias and skin photosensitivity seen in the cutaneous porphyrias.
Common symptoms reported by people with variegate porphyria
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for variegate porphyria
Let’s build this page together! When you share what it’s like to have variegate porphyria through your profile, those stories and data appear here too.
Got a question about living with variegate porphyria? Members in the forum might have the answers.
Compare treatments taken by people with variegate porphyria
Let’s build this page together! When you share what it’s like to have variegate porphyria through your profile, those stories and data appear here too.
Got a question about living with variegate porphyria? Members in the forum might have the answers.
Who has variegate porphyria on PatientsLikeMe?
0
new patients joined this month
10
say variegate porphyria is their primary condition