Vanishing white matter disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is vanishing white matter disease?
Vanishing White Matter Disease (VWM) is an inherited condition; it is a progressive neurological deterioration of the myelin sheath (white matter). It allows for electrical signals to communicate between neurons. Decreased electrical signals disrupt the proper functioning of the nervous system.
Common symptoms reported by people with vanishing white matter disease
Treatments taken by people with vanishing white matter disease
Let’s build this page together! When you share what it’s like to have vanishing white matter disease through your profile, those stories and data appear here too.
Got a question about living with vanishing white matter disease? Members in the forum might have the answers.
Compare treatments taken by people with vanishing white matter disease
Let’s build this page together! When you share what it’s like to have vanishing white matter disease through your profile, those stories and data appear here too.
Got a question about living with vanishing white matter disease? Members in the forum might have the answers.
Who has vanishing white matter disease on PatientsLikeMe?
- 10 patients have this condition
- 0 new patients joined this month
- 7 say vanishing white matter disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 4 | |
| 50s | 0 | |
| 60s | 2 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 2 | |
| 40-49 years | 1 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 4 | |
| Female | 6 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 4 | |
| Not Diagnosed | 2 |