Sickle cell disease
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is sickle cell disease?
Sickle cell disease is an inherited blood disorder that affects red blood cells (RBC), which contain mostly hemoglobin S, an abnormal type of hemoglobin. Sometimes these RBCs become crescent shaped and have difficulty passing through small blood vessels.
Common symptoms reported by people with sickle cell disease
Common symptoms
How bad it is
What people are taking for it
Common symptom
Weather or temperature sensitivity
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with sickle cell disease
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with sickle cell disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with sickle cell disease
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
for sickle cell disease (1 evaluation)
Total evaluations
1
Tried for
sickle cell disease
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
sickle cell disease
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with sickle cell disease, who reported starting treatments within the last 5 years.
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Who has sickle cell disease on PatientsLikeMe?
- 171 patients have this condition
- 4 new patients joined this month
- 142 say sickle cell disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 13 | |
| 20s | 26 | |
| 30s | 40 | |
| 40s | 35 | |
| 50s | 17 | |
| 60s | 8 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 30 | |
| 20-29 years | 3 | |
| 30-39 years | 2 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 48 | |
| Female | 99 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 46 | |
| Not Diagnosed | 2 |
These charts show data from sickle cell disease patients who have completed their condition history
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