Sickle cell disease

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  • help researchers shorten the path to new treatments tomorrow

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What is sickle cell disease?

Sickle cell disease is an inherited blood disorder that affects red blood cells (RBC), which contain mostly hemoglobin S, an abnormal type of hemoglobin. Sometimes these RBCs become crescent shaped and have difficulty passing through small blood vessels.

Common symptoms reported by people with sickle cell disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for sickle cell disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
68
Tried for
sickle cell disease (1)

Data from patients with sickle cell disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with sickle cell disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Morphine ER)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
sickle cell disease (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with sickle cell disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has sickle cell disease on PatientsLikeMe?

  • 4 new patients joined this month
  • 157 say sickle cell disease is their primary condition

Age
Age Proportion # of patients
<20 14
20s 23
30s 48
40s 38
50s 17
60s 7
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 30
20-29 years 3
30-39 years 2
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 52
Female 106

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 47
Not Diagnosed 2

These charts show data from sickle cell disease patients who have completed their condition history
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