Septo optic dysplasia
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What is septo optic dysplasia?
Septo-Optic Dysplasia is defined by three characteristics: underdevelopment of the optic nerve (visual impairment), abnormal formation of structures along the midline of the brain (abnormal brain development), and pituitary hypoplasia (deficiency of essential hormones).
Common symptoms reported by people with septo optic dysplasia
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with septo optic dysplasia
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with septo optic dysplasia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with septo optic dysplasia
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with septo optic dysplasia, who reported starting treatments within the last 5 years.
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Who has septo optic dysplasia on PatientsLikeMe?
- 18 patients have this condition
- 0 new patients joined this month
- 11 say septo optic dysplasia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 4 | |
| 30s | 2 | |
| 40s | 6 | |
| 50s | 2 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 6 | |
| 20-29 years | 0 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 11 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 7 | |
| Not Diagnosed | 1 |
These charts show data from septo optic dysplasia patients who have completed their condition history
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