Retinoblastoma
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is retinoblastoma?
Retinoblastoma is a rare form of cancer that develops in the retina of the eye. The retina is a layer of tissue that is responsible for vision.
Common symptoms reported by people with retinoblastoma
Treatments taken by people with retinoblastoma
Let’s build this page together! When you share what it’s like to have retinoblastoma through your profile, those stories and data appear here too.
Got a question about living with retinoblastoma? Members in the forum might have the answers.
Compare treatments taken by people with retinoblastoma
Let’s build this page together! When you share what it’s like to have retinoblastoma through your profile, those stories and data appear here too.
Got a question about living with retinoblastoma? Members in the forum might have the answers.
Who has retinoblastoma on PatientsLikeMe?
- 0 new patients joined this month
- 5 say retinoblastoma is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 0 | |
| 30s | 3 | |
| 40s | 0 | |
| 50s | 0 | |
| 60s | 2 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 4 | |
| Female | 3 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have retinoblastoma through your profile, those stories and data appear here too.
Got a question about living with retinoblastoma? Members in the forum might have the answers.