What is paroxysmal nocturnal hemoglobinuria?
Paroxysmal nocturnal hemoglobinuria is a type of hemolytic anemia where the body's immune system attacks its own red blood cells (RBCs), leading to their destruction (hemolysis). One characteristic of the condition is dark-colored urine due to the presence of RBCs (hemoglobinuria).
How do members experience paroxysmal nocturnal hemoglobinuria?
Top 5 symptoms reported by people with paroxysmal nocturnal hemoglobinuria*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for paroxysmal nocturnal hemoglobinuria*
Who has paroxysmal nocturnal hemoglobinuria on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 4 | |
| 40s | 2 | |
| 50s | 2 | |
| 60s | 2 | |
| 70+ | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 7 | |
| Female | 6 |