Olfactory reference syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is olfactory reference syndrome?

Olfactory reference syndrome is characterized as a persistent belief or an intrusive thought that one's body odor is offensive, which is not perceived by others.

Common symptoms reported by people with olfactory reference syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with olfactory reference syndrome

Let’s build this page together! When you share what it’s like to have olfactory reference syndrome through your profile, those stories and data appear here too.

Got a question about living with olfactory reference syndrome? Members in the forum might have the answers.

Compare treatments taken by people with olfactory reference syndrome

Let’s build this page together! When you share what it’s like to have olfactory reference syndrome through your profile, those stories and data appear here too.

Got a question about living with olfactory reference syndrome? Members in the forum might have the answers.

Who has olfactory reference syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 2
30s 2
40s 0
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from olfactory reference syndrome patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have olfactory reference syndrome through your profile, those stories and data appear here too.

Got a question about living with olfactory reference syndrome? Members in the forum might have the answers.