What is myotonic dystrophy?

Myotonic dystrophy is a chronic, slowly progressing, highly variable inherited multisystemic disease. It is characterized by wasting of the muscles (muscular dystrophy), cataracts, heart conduction defects, endocrine changes, and myotonia. Myotonic dystrophy can occur at any age.

How do members experience myotonic dystrophy?

Top 5 symptoms reported by people with myotonic dystrophy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for myotonic dystrophy*

Who has myotonic dystrophy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 7
40s 17
50s 6
60s 8
70+ 5

Distribution of sex

Sex

Sex Proportion # of patients
Male 12
Female 31