Moebius syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Moebius syndrome?
Moebius syndrome is a neurological condition, it is primarily the absence or underdevelopment of the 6th and 7th cranial nerves, which affects the eye and facial muscles.
Common symptoms reported by people with Moebius syndrome
Treatments taken by people with Moebius syndrome

Let’s build this page together! When you share what it’s like to have Moebius syndrome through your profile, those stories and data appear here too.
Got a question about living with Moebius syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Moebius syndrome

Let’s build this page together! When you share what it’s like to have Moebius syndrome through your profile, those stories and data appear here too.
Got a question about living with Moebius syndrome? Members in the forum might have the answers.
Who has Moebius syndrome on PatientsLikeMe?
- 7 patients have this condition
- 0 new patients joined this month
- 5 say Moebius syndrome is their primary condition
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 1 | |
30s | 1 | |
40s | 2 | |
50s | 0 | |
60s | 1 | |
70+ | 0 |
Age at first symptom | Proportion | # of patients |
---|---|---|
0-19 years | 1 | |
20-29 years | 0 | |
30-39 years | 0 | |
40-49 years | 0 | |
50-59 years | 0 | |
60-69 years | 0 | |
70+ years | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 1 | |
Female | 4 |
Diagnosis status | Proportion | # of patients |
---|---|---|
Diagnosed | 1 | |
Not Diagnosed | 0 |

Let’s build this page together! When you share what it’s like to have Moebius syndrome through your profile, those stories and data appear here too.
Got a question about living with Moebius syndrome? Members in the forum might have the answers.