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Maffucci syndrome is characterized as benign (noncancerous) cartilage tumors that appears on the inside of the bone along with benign dark red or purplish skin growths consisting of tangles of abnormal blood vessels (hemangiomas).
How do members experience Maffucci syndrome?
Top 5 symptoms reported by people with Maffucci syndrome*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Maffucci syndrome*
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Maffucci syndrome is characterized as benign (noncancerous) cartilage tumors that appears on the inside of the bone along with benign dark red or purplish skin growths consisting of tangles of abnormal blood vessels (hemangiomas).
Common symptoms reported by people with Maffucci syndrome
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for Maffucci syndrome
Let’s build this page together! When you share what it’s like to have Maffucci syndrome through your profile, those stories and data appear here too.
Got a question about living with Maffucci syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Maffucci syndrome
Let’s build this page together! When you share what it’s like to have Maffucci syndrome through your profile, those stories and data appear here too.
Got a question about living with Maffucci syndrome? Members in the forum might have the answers.
Who has Maffucci syndrome on PatientsLikeMe?
0
new patients joined this month
10
say Maffucci syndrome is their primary condition