Maffucci syndrome
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What is Maffucci syndrome?
Maffucci syndrome is characterized as benign (noncancerous) cartilage tumors that appears on the inside of the bone along with benign dark red or purplish skin growths consisting of tangles of abnormal blood vessels (hemangiomas).
Common symptoms reported by people with Maffucci syndrome
Treatments taken by people with Maffucci syndrome
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Compare treatments taken by people with Maffucci syndrome
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Got a question about living with Maffucci syndrome? Members in the forum might have the answers.
Who has Maffucci syndrome on PatientsLikeMe?
- 8 patients have this condition
- 0 new patients joined this month
- 8 say Maffucci syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 1 | |
| 40s | 2 | |
| 50s | 0 | |
| 60s | 1 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 6 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1 | |
| Not Diagnosed | 1 |
Let’s build this page together! When you share what it’s like to have Maffucci syndrome through your profile, those stories and data appear here too.
Got a question about living with Maffucci syndrome? Members in the forum might have the answers.