What is Maffucci syndrome?
Maffucci syndrome is characterized as benign (noncancerous) cartilage tumors that appears on the inside of the bone along with benign dark red or purplish skin growths consisting of tangles of abnormal blood vessels (hemangiomas).
How do members experience Maffucci syndrome?
Top 5 symptoms reported by people with Maffucci syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Maffucci syndrome*
Who has Maffucci syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 2 | |
| 40s | 1 | |
| 50s | 2 | |
| 60s | 0 | |
| 70+ | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 7 |