What is lymphomatoid granulomatosis?

Lymphomatoid granulomatosis is a rare lesional syndrome associated with Epstein-Barr virus EBV-associated B-cell LPD or peripheral T-cell lymphoma. It is characterized by prominent pulmonary involvement but can also involve multiple extrapulmonary sites.

How do members experience lymphomatoid granulomatosis?

Top 5 symptoms reported by people with lymphomatoid granulomatosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for lymphomatoid granulomatosis*

Who has lymphomatoid granulomatosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 1
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 1

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What is lymphomatoid granulomatosis?

Lymphomatoid granulomatosis is a rare lesional syndrome associated with Epstein-Barr virus EBV-associated B-cell LPD or peripheral T-cell lymphoma. It is characterized by prominent pulmonary involvement but can also involve multiple extrapulmonary sites.



Common symptoms reported by people with lymphomatoid granulomatosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for lymphomatoid granulomatosis

Let’s build this page together! When you share what it’s like to have lymphomatoid granulomatosis through your profile, those stories and data appear here too.

Got a question about living with lymphomatoid granulomatosis? Members in the forum might have the answers.


Compare treatments taken by people with lymphomatoid granulomatosis

Let’s build this page together! When you share what it’s like to have lymphomatoid granulomatosis through your profile, those stories and data appear here too.

Got a question about living with lymphomatoid granulomatosis? Members in the forum might have the answers.



Who has lymphomatoid granulomatosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 3 say lymphomatoid granulomatosis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 1
60s 1
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from lymphomatoid granulomatosis patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have lymphomatoid granulomatosis through your profile, those stories and data appear here too.

Got a question about living with lymphomatoid granulomatosis? Members in the forum might have the answers.