What is lymphangiomatosis?

Lymphangiomatosis is a condition of multiple tumors (lymphangiomas) or cysts that grow in the lymphatic system. The lymphatic system helps the body to fight off infection. These tumors can cause cause pain, difficulty breathing, and other symptoms based on the location of the tumor.

How do members experience lymphangiomatosis?

Top 5 symptoms reported by people with lymphangiomatosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for lymphangiomatosis*

Who has lymphangiomatosis on PatientsLikeMe?


Age Proportion # of patients
<20 1
20s 6
30s 3
40s 4
50s 5
60s 3
70+ 0

Distribution of sex


Sex Proportion # of patients
Male 7
Female 15