What is locked in syndrome?

Locked in syndrome occurs when a person is cognitively present but unable to communicate or move due to paralysis of voluntary muscles in the body. Often, a person is able to communicate with eye movements, unless total locked in syndrome is present where a person is unable to move the eyes.

How do members experience locked in syndrome?

Top 5 symptoms reported by people with locked in syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for locked in syndrome*

Who has locked in syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 1
50s 2
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 3