What is lissencephaly?

Lissencephaly, which literally means "smooth brain," is a rare, gene-linked brain malformation characterized by the absence of normal convolutions (folds) in the cerebral cortex and an abnormally small head (microcephaly).

How do members experience lissencephaly?

Top 5 symptoms reported by people with lissencephaly*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for lissencephaly*

Who has lissencephaly on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 4
30s 0
40s 1
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 6

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What is lissencephaly?

Lissencephaly, which literally means "smooth brain," is a rare, gene-linked brain malformation characterized by the absence of normal convolutions (folds) in the cerebral cortex and an abnormally small head (microcephaly).



Common symptoms reported by people with lissencephaly

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for lissencephaly

Let’s build this page together! When you share what it’s like to have lissencephaly through your profile, those stories and data appear here too.

Got a question about living with lissencephaly? Members in the forum might have the answers.


Compare treatments taken by people with lissencephaly

Let’s build this page together! When you share what it’s like to have lissencephaly through your profile, those stories and data appear here too.

Got a question about living with lissencephaly? Members in the forum might have the answers.



Who has lissencephaly on PatientsLikeMe?

  • 0 new patients joined this month
  • 9 say lissencephaly is their primary condition

Age
Age Proportion # of patients
<20 4
20s 4
30s 0
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 1

These charts show data from lissencephaly patients who have completed their condition history
Last updated: