What is Li-Fraumeni syndrome?

Li-Fraumeni syndrome is a rare genetic condition that greatly increases a person’s chances of developing cancer. It can cause multiple cancers throughout a patient’s lifetime, with most occurring in childhood or early adulthood. The condition is a result of a mutation in the TP53 gene.

How do members experience Li-Fraumeni syndrome?

Top 5 symptoms reported by people with Li-Fraumeni syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Li-Fraumeni syndrome*

Who has Li-Fraumeni syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 2
40s 1
50s 3
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 9