Limb girdle muscular dystrophy
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What is limb girdle muscular dystrophy?
Limb-girdle muscular dystrophy is a term for a group of diseases that cause muscle weakness and wasting in the arms and legs. The muscles most affected are the muscles of the shoulders, upper arms, pelvic area, and thighs.
Common symptoms reported by people with limb girdle muscular dystrophy
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with limb girdle muscular dystrophy
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with limb girdle muscular dystrophy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with limb girdle muscular dystrophy
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with limb girdle muscular dystrophy, who reported starting treatments within the last 5 years.
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Who has limb girdle muscular dystrophy on PatientsLikeMe?
- 42 patients have this condition
- 0 new patients joined this month
- 34 say LGMD is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 6 | |
| 20s | 3 | |
| 30s | 10 | |
| 40s | 3 | |
| 50s | 10 | |
| 60s | 4 | |
| 70+ | 3 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 6 | |
| 20-29 years | 2 | |
| 30-39 years | 1 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 18 | |
| Female | 21 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| LGMD1A | 0 | |
| LGMD1B | 1 | |
| LGMD1C | 0 | |
| LGMD1D | 0 | |
| LGMD1E (Desmin myopathy) | 0 | |
| LGMD1F | 1 | |
| LGMD1H | 0 | |
| LGMD2A (Calpainopathy) | 1 | |
| LGMD2B (Dysferlinopathy) | 5 | |
| LGMD2C | 0 | |
| LGMD2D | 1 | |
| LGMD2E | 0 | |
| LGMD2F | 0 | |
| LGMD2G | 1 | |
| LGMD2H | 0 | |
| LGMD2I | 7 | |
| LGMD2J | 0 | |
| LGMD2K | 2 | |
| LGMD2L | 2 | |
| LGMD2M | 0 | |
| LGMD2N | 0 | |
| LGMD2O | 0 | |
| LGMD2Q | 0 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 14 | |
| Not Diagnosed | 1 |
These charts show data from LGMD patients who have completed their condition history
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