What is Langerhans cell histiocytosis?
Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.
How do members experience Langerhans cell histiocytosis?
Top 5 symptoms reported by people with Langerhans cell histiocytosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Langerhans cell histiocytosis*
Who has Langerhans cell histiocytosis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 4 | |
| 20s | 8 | |
| 30s | 13 | |
| 40s | 13 | |
| 50s | 10 | |
| 60s | 9 | |
| 70+ | 6 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 24 | |
| Female | 39 |