What is Langerhans cell histiocytosis?

Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.

How do members experience Langerhans cell histiocytosis?

Top 5 symptoms reported by people with Langerhans cell histiocytosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Langerhans cell histiocytosis*

Who has Langerhans cell histiocytosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 7
30s 14
40s 12
50s 11
60s 9
70+ 4

Distribution of sex

Sex

Sex Proportion # of patients
Male 23
Female 38