Klippel-Feil syndrome
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What is Klippel-Feil syndrome?
Klippel Feil Syndrome is characterized as a short, webbed neck; restricted motion in the neck region (cervical spine); and a low hairline (back of head). Type I is a massive fusion of the cervical spine, type 2 is the fusion of 1 or 2 vertebrae, and type 3 includes thoracic/lumbar spine deformities.
Common symptoms reported by people with Klippel-Feil syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Klippel-Feil syndrome
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with Klippel-Feil syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Klippel-Feil syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
pain
(1)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with Klippel-Feil syndrome, who reported starting treatments within the last 5 years.
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Who has Klippel-Feil syndrome on PatientsLikeMe?
- 76 patients have this condition
- 1 new patients joined this month
- 59 say Klippel-Feil syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 6 | |
| 20s | 7 | |
| 30s | 13 | |
| 40s | 19 | |
| 50s | 15 | |
| 60s | 9 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 13 | |
| 20-29 years | 4 | |
| 30-39 years | 1 | |
| 40-49 years | 3 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 12 | |
| Female | 61 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 26 | |
| Not Diagnosed | 3 |
These charts show data from Klippel-Feil syndrome patients who have completed their condition history
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