Dismiss this notification
PatientsLikeMe would like to remind you that your browser is out of date and many features of the website may not function as expected.
Please update your browser
for more security and a better experience.
Klippel Feil Syndrome is characterized as a short, webbed neck; restricted motion in the neck region (cervical spine); and a low hairline (back of head). Type I is a massive fusion of the cervical spine, type 2 is the fusion of 1 or 2 vertebrae, and type 3 includes thoracic/lumbar spine deformities.
How do members experience Klippel-Feil syndrome?
Top 5 symptoms reported by people with Klippel-Feil syndrome*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Klippel-Feil syndrome*
Lithium carbonate wasn't helping ALS patients, and we learned it faster than the clinical trials did. Read about it in
Nature.
Insomnia is more common—in fact worse—for people with chronic conditions. Read about it on the
blog.
Interacting with other PatientsLikeMe members improves your health. Read it on
healthaffairs.org.
The severity of Parkinson's Disease symptoms changes faster than researchers thought, so clinical trials should be designed differently. Read about it on
JMIR.
Klippel Feil Syndrome is characterized as a short, webbed neck; restricted motion in the neck region (cervical spine); and a low hairline (back of head). Type I is a massive fusion of the cervical spine, type 2 is the fusion of 1 or 2 vertebrae, and type 3 includes thoracic/lumbar spine deformities.
Common symptoms reported by people with Klippel-Feil syndrome
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for Klippel-Feil syndrome
Let’s build this page together! When you share what it’s like to have Klippel-Feil syndrome through your profile, those stories and data appear here too.
Got a question about living with Klippel-Feil syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Klippel-Feil syndrome
Let’s build this page together! When you share what it’s like to have Klippel-Feil syndrome through your profile, those stories and data appear here too.
Got a question about living with Klippel-Feil syndrome? Members in the forum might have the answers.
Who has Klippel-Feil syndrome on PatientsLikeMe?
0
new patients joined this month
77
say Klippel-Feil syndrome is their primary condition