What is Kearns-Sayre syndrome?

is a rare neuromuscular disorder with onset usually before the age of 20. It is the result of abnormalities in the DNA of mitochondria - small rod-like structures found in every cell of the body that produce the energy that drives cellular functions.

How do members experience Kearns-Sayre syndrome?

Top 5 symptoms reported by people with Kearns-Sayre syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Kearns-Sayre syndrome*

Who has Kearns-Sayre syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 0
40s 0
50s 2
60s 3
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 5