Intestinal lymphangiectasia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is intestinal lymphangiectasia?
Intestinal lymphangiectasia is characterized by an abnormality of the lymphatic channels causing rupture and loss of lymph into the intestines. Symptoms include varying degrees of swelling of the lower limbs, mild diarrhea, weight loss and fatigue. It is most often treated with a low fat diet.
Common symptoms reported by people with intestinal lymphangiectasia
Treatments taken by people with intestinal lymphangiectasia
Let’s build this page together! When you share what it’s like to have intestinal lymphangiectasia through your profile, those stories and data appear here too.
Got a question about living with intestinal lymphangiectasia? Members in the forum might have the answers.
Compare treatments taken by people with intestinal lymphangiectasia
Let’s build this page together! When you share what it’s like to have intestinal lymphangiectasia through your profile, those stories and data appear here too.
Got a question about living with intestinal lymphangiectasia? Members in the forum might have the answers.
Who has intestinal lymphangiectasia on PatientsLikeMe?
- 18 patients have this condition
- 1 new patients joined this month
- 14 say intestinal lymphangiectasia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 2 | |
| 30s | 2 | |
| 40s | 2 | |
| 50s | 4 | |
| 60s | 2 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 1 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 12 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 3 | |
| Not Diagnosed | 0 |