Intersex

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is intersex?

Intersex is a group of conditions where there is a discrepancy between the external genitals and the internal genitals (the testes and ovaries). This is usually understood to be congenital, involving chromosomal, morphologic, genital and/or gonadal anomalies.

Common symptoms reported by people with intersex


Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with intersex

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)

Data from patients with intersex, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with intersex

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with intersex, who reported starting treatments within the last 5 years.
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Who has intersex on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 4
40s 0
50s 2
60s 2
70+ 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 2

These charts show data from intersex patients who have completed their condition history
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