What is idiopathic pulmonary hemosiderosis?
Idiopathic pulmonary hemosiderosis is a rare condition found primarily in children that causes recurrent blood collection within the lung's alveoli; this causes a disruption in the exchange of O2 and CO2. Common symptoms include, cough, shortness of breath, and anemia.
How do members experience idiopathic pulmonary hemosiderosis?
Top 5 symptoms reported by people with idiopathic pulmonary hemosiderosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for idiopathic pulmonary hemosiderosis*
Who has idiopathic pulmonary hemosiderosis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 3 | |
| 40s | 5 | |
| 50s | 0 | |
| 60s | 3 | |
| 70+ | 3 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6 | |
| Female | 6 |