Idiopathic pulmonary hemosiderosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is idiopathic pulmonary hemosiderosis?
Idiopathic pulmonary hemosiderosis is a rare condition found primarily in children that causes recurrent blood collection within the lung's alveoli; this causes a disruption in the exchange of O2 and CO2. Common symptoms include, cough, shortness of breath, and anemia.
Common symptoms reported by people with idiopathic pulmonary hemosiderosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with idiopathic pulmonary hemosiderosis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with idiopathic pulmonary hemosiderosis, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with idiopathic pulmonary hemosiderosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for idiopathic pulmonary hemosiderosis (2 evaluations)
Side effects
Total evaluations
2
Tried for
idiopathic pulmonary hemosiderosis
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with idiopathic pulmonary hemosiderosis, who reported starting treatments within the last 5 years.
Last updated:
Who has idiopathic pulmonary hemosiderosis on PatientsLikeMe?
- 0 new patients joined this month
- 9 say idiopathic pulmonary hemosiderosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 1 | |
| 40s | 1 | |
| 50s | 1 | |
| 60s | 2 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 4 | |
| Female | 5 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 4 | |
| Not Diagnosed | 0 |
These charts show data from idiopathic pulmonary hemosiderosis patients who have completed their condition history
Last updated: