What is idiopathic pulmonary hemosiderosis?

Idiopathic pulmonary hemosiderosis is a rare condition found primarily in children that causes recurrent blood collection within the lung's alveoli; this causes a disruption in the exchange of O2 and CO2. Common symptoms include, cough, shortness of breath, and anemia.

How do members experience idiopathic pulmonary hemosiderosis?

Top 5 symptoms reported by people with idiopathic pulmonary hemosiderosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for idiopathic pulmonary hemosiderosis*

Who has idiopathic pulmonary hemosiderosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 3
40s 5
50s 0
60s 3
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 6
Female 6

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What is idiopathic pulmonary hemosiderosis?

Idiopathic pulmonary hemosiderosis is a rare condition found primarily in children that causes recurrent blood collection within the lung's alveoli; this causes a disruption in the exchange of O2 and CO2. Common symptoms include, cough, shortness of breath, and anemia.



Common symptoms reported by people with idiopathic pulmonary hemosiderosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for idiopathic pulmonary hemosiderosis

Let’s build this page together! When you share what it’s like to have idiopathic pulmonary hemosiderosis through your profile, those stories and data appear here too.

Got a question about living with idiopathic pulmonary hemosiderosis? Members in the forum might have the answers.


Compare treatments taken by people with idiopathic pulmonary hemosiderosis

Let’s build this page together! When you share what it’s like to have idiopathic pulmonary hemosiderosis through your profile, those stories and data appear here too.

Got a question about living with idiopathic pulmonary hemosiderosis? Members in the forum might have the answers.



Who has idiopathic pulmonary hemosiderosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 14 say idiopathic pulmonary hemosiderosis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 3
40s 5
50s 0
60s 3
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from idiopathic pulmonary hemosiderosis patients who have completed their condition history
Last updated: