Periventricular heterotopia
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What is periventricular heterotopia?
Heterotopia (displacement from normal position) periventricular (sides of ventricles) is a rare genetic condition in which the fetus' (unborn baby's) nerve cells fail move to the correct part of the brain, causing seizure activity usually beginning during the teenage years.
Common symptoms reported by people with periventricular heterotopia
Treatments taken by people with periventricular heterotopia
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Compare treatments taken by people with periventricular heterotopia
Let’s build this page together! When you share what it’s like to have periventricular heterotopia through your profile, those stories and data appear here too.
Got a question about living with periventricular heterotopia? Members in the forum might have the answers.
Who has periventricular heterotopia on PatientsLikeMe?
- 18 patients have this condition
- 1 new patients joined this month
- 16 say periventricular heterotopia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 6 | |
| 20s | 3 | |
| 30s | 4 | |
| 40s | 2 | |
| 50s | 2 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 4 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 15 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 8 | |
| Not Diagnosed | 0 |