What is hereditary coproporphyria?

Hereditary coproporphyria (HCP) is one of the acute hepatic porphyria caused by a defect in the enzyme coproporphyrinogen III oxidase. Acute attacks most often result in neurovisceral symptoms that may include abdominal pain, constipation, and weakness. Less commonly, skin changes may occur.

How do members experience hereditary coproporphyria?

Top 5 symptoms reported by people with hereditary coproporphyria*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for hereditary coproporphyria*

Who has hereditary coproporphyria on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 3
40s 3
50s 4
60s 2
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 15