What is hereditary coproporphyria?
Hereditary coproporphyria (HCP) is one of the acute hepatic porphyria caused by a defect in the enzyme coproporphyrinogen III oxidase. Acute attacks most often result in neurovisceral symptoms that may include abdominal pain, constipation, and weakness. Less commonly, skin changes may occur.
How do members experience hereditary coproporphyria?
Top 5 symptoms reported by people with hereditary coproporphyria*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for hereditary coproporphyria*
Who has hereditary coproporphyria on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 2 | |
30s | 3 | |
40s | 3 | |
50s | 4 | |
60s | 2 | |
70+ | 3 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 3 | |
Female | 15 |