Hereditary angioedema
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What is hereditary angioedema?
Hereditary angioedema is a condition of the immune system. It causes severe swelling, in the face, arms, legs, lips, eyes, tongue, throat, airway, and abdominal cramping. The trigger of the episode can be unknown or related to stress or trauma.
Common symptoms reported by people with hereditary angioedema
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hereditary angioedema
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with hereditary angioedema, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hereditary angioedema
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hereditary angioedema
(1)
pain
(1)
Perceived effectiveness
for hereditary angioedema (1 evaluation)
Side effects
Total evaluations
1
Tried for
hereditary angioedema
(1)
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with hereditary angioedema, who reported starting treatments within the last 5 years.
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Who has hereditary angioedema on PatientsLikeMe?
- 47 patients have this condition
- 0 new patients joined this month
- 37 say hereditary angioedema is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 6 | |
| 30s | 6 | |
| 40s | 13 | |
| 50s | 8 | |
| 60s | 3 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 7 | |
| 20-29 years | 5 | |
| 30-39 years | 1 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 8 | |
| Female | 32 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 17 | |
| Not Diagnosed | 2 |
These charts show data from hereditary angioedema patients who have completed their condition history
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