What is hemophagocytic lymphohistiocytosis?

Hemophagocytic lymphohistiocytosis is a disorder characterized as an overproduction of white blood cells (lymphocytes and histiocytes). Excessive amounts of white blood cells build up and may damage organs.

How do members experience hemophagocytic lymphohistiocytosis?

Top 5 symptoms reported by people with hemophagocytic lymphohistiocytosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for hemophagocytic lymphohistiocytosis*

Who has hemophagocytic lymphohistiocytosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 0
30s 2
40s 2
50s 0
60s 2
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 3