Gray matter heterotopia
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What is gray matter heterotopia?
Gray matter heterotopia is a neurological disorder that is characterized by the gray matter in the brain being located in the wrong part of the brain. It is associated with epilepsy and can affect higher brain functions and motor skills. Seizures are generally resistant to medication.
Common symptoms reported by people with gray matter heterotopia
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with gray matter heterotopia
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with gray matter heterotopia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with gray matter heterotopia
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with gray matter heterotopia, who reported starting treatments within the last 5 years.
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Who has gray matter heterotopia on PatientsLikeMe?
- 56 patients have this condition
- 2 new patients joined this month
- 50 say gray matter heterotopia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 12 | |
| 20s | 10 | |
| 30s | 14 | |
| 40s | 8 | |
| 50s | 4 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 3 | |
| 20-29 years | 3 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 13 | |
| Female | 37 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 9 | |
| Not Diagnosed | 1 |
These charts show data from gray matter heterotopia patients who have completed their condition history
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