What is gray matter heterotopia?

Gray matter heterotopia is a neurological disorder that is characterized by the gray matter in the brain being located in the wrong part of the brain. It is associated with epilepsy and can affect higher brain functions and motor skills. Seizures are generally resistant to medication.

How do members experience gray matter heterotopia?

Top 5 symptoms reported by people with gray matter heterotopia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for gray matter heterotopia*

Who has gray matter heterotopia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 11
20s 11
30s 22
40s 18
50s 7
60s 5
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 19
Female 54

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What is gray matter heterotopia?

Gray matter heterotopia is a neurological disorder that is characterized by the gray matter in the brain being located in the wrong part of the brain. It is associated with epilepsy and can affect higher brain functions and motor skills. Seizures are generally resistant to medication.



Common symptoms reported by people with gray matter heterotopia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for gray matter heterotopia

Let’s build this page together! When you share what it’s like to have gray matter heterotopia through your profile, those stories and data appear here too.

Got a question about living with gray matter heterotopia? Members in the forum might have the answers.


Compare treatments taken by people with gray matter heterotopia

Let’s build this page together! When you share what it’s like to have gray matter heterotopia through your profile, those stories and data appear here too.

Got a question about living with gray matter heterotopia? Members in the forum might have the answers.



Who has gray matter heterotopia on PatientsLikeMe?

  • 0 new patients joined this month
  • 79 say gray matter heterotopia is their primary condition

Age
Age Proportion # of patients
<20 11
20s 11
30s 22
40s 18
50s 7
60s 5
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 3
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 19
Female 54

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 1

These charts show data from gray matter heterotopia patients who have completed their condition history
Last updated: