What is Goldenhar syndrome?

Goldenhar syndrome is a condition that affects the development of the head, face, and spine regions. The manifestations of this syndrome is highly variable.

How do members experience Goldenhar syndrome?

Top 5 symptoms reported by people with Goldenhar syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Goldenhar syndrome*

Who has Goldenhar syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 0
30s 2
40s 1
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 2