What is fibrous dysplasia?

Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.

How do members experience fibrous dysplasia?

Top 5 symptoms reported by people with fibrous dysplasia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for fibrous dysplasia*

Who has fibrous dysplasia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 2
30s 13
40s 14
50s 19
60s 6
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 13
Female 44

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What is fibrous dysplasia?

Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.



Common symptoms reported by people with fibrous dysplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for fibrous dysplasia

Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.

Got a question about living with fibrous dysplasia? Members in the forum might have the answers.


Compare treatments taken by people with fibrous dysplasia

Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.

Got a question about living with fibrous dysplasia? Members in the forum might have the answers.



Who has fibrous dysplasia on PatientsLikeMe?

  • 0 new patients joined this month
  • 46 say fibrous dysplasia is their primary condition

Age
Age Proportion # of patients
<20 2
20s 2
30s 13
40s 14
50s 19
60s 6
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 7
30-39 years 3
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 13
Female 44

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26
Not Diagnosed 0

These charts show data from fibrous dysplasia patients who have completed their condition history
Last updated: