Dismiss this notification
PatientsLikeMe would like to remind you that your browser is out of date and many features of the website may not function as expected.
Please update your browser
for more security and a better experience.
Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.
How do members experience fibrous dysplasia?
Top 5 symptoms reported by people with fibrous dysplasia*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for fibrous dysplasia*
Lithium carbonate wasn't helping ALS patients, and we learned it faster than the clinical trials did. Read about it in
Nature.
Insomnia is more common—in fact worse—for people with chronic conditions. Read about it on the
blog.
Interacting with other PatientsLikeMe members improves your health. Read it on
healthaffairs.org.
The severity of Parkinson's Disease symptoms changes faster than researchers thought, so clinical trials should be designed differently. Read about it on
JMIR.
Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.
Common symptoms reported by people with fibrous dysplasia
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for fibrous dysplasia
Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.
Got a question about living with fibrous dysplasia? Members in the forum might have the answers.
Compare treatments taken by people with fibrous dysplasia
Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.
Got a question about living with fibrous dysplasia? Members in the forum might have the answers.
Who has fibrous dysplasia on PatientsLikeMe?
0
new patients joined this month
46
say fibrous dysplasia is their primary condition