Fibrous dysplasia

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What is fibrous dysplasia?

Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.

Common symptoms reported by people with fibrous dysplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibrous dysplasia

Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.

Got a question about living with fibrous dysplasia? Members in the forum might have the answers.

Compare treatments taken by people with fibrous dysplasia

Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.

Got a question about living with fibrous dysplasia? Members in the forum might have the answers.

Who has fibrous dysplasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 8
30s 9
40s 19
50s 11
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 7
30-39 years 3
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 13
Female 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26
Not Diagnosed 0

These charts show data from fibrous dysplasia patients who have completed their condition history
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