Fibrous dysplasia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is fibrous dysplasia?
Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.
Common symptoms reported by people with fibrous dysplasia
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with fibrous dysplasia
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with fibrous dysplasia, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with fibrous dysplasia
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with fibrous dysplasia, who reported starting treatments within the last 5 years.
Last updated:
Who has fibrous dysplasia on PatientsLikeMe?
- 55 patients have this condition
- 0 new patients joined this month
- 38 say fibrous dysplasia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 8 | |
| 30s | 8 | |
| 40s | 19 | |
| 50s | 10 | |
| 60s | 2 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 6 | |
| 20-29 years | 7 | |
| 30-39 years | 3 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 12 | |
| Female | 38 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 26 | |
| Not Diagnosed | 0 |
These charts show data from fibrous dysplasia patients who have completed their condition history
Last updated: