Fibrous dysplasia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is fibrous dysplasia?
Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected. occurs in childhood, usually between ages 3 - 15. The condition does not run in families (not hereditary), and the cause is unknown.
Common symptoms reported by people with fibrous dysplasia
Treatments taken by people with fibrous dysplasia
Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.
Got a question about living with fibrous dysplasia? Members in the forum might have the answers.
Compare treatments taken by people with fibrous dysplasia
Let’s build this page together! When you share what it’s like to have fibrous dysplasia through your profile, those stories and data appear here too.
Got a question about living with fibrous dysplasia? Members in the forum might have the answers.
Who has fibrous dysplasia on PatientsLikeMe?
- 0 new patients joined this month
- 42 say fibrous dysplasia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 7 | |
| 30s | 11 | |
| 40s | 19 | |
| 50s | 11 | |
| 60s | 2 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 6 | |
| 20-29 years | 7 | |
| 30-39 years | 3 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 40 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 26 | |
| Not Diagnosed | 0 |