What is Erdheim-Chester Disease?
Erdheim-Chester disease is a rare condition in which there is excessive production and accumulation of histiocytes, which normally fight infection. The histiocytes accumulate in the loose connective tissue and bone, making these tissues abnormally thick, dense, and fibrous.
How do members experience Erdheim-Chester Disease?
Top 5 symptoms reported by people with Erdheim-Chester Disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Erdheim-Chester Disease*
Who has Erdheim-Chester Disease on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 1 | |
30s | 1 | |
40s | 2 | |
50s | 2 | |
60s | 3 | |
70+ | 1 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 7 | |
Female | 2 |