What is Erdheim-Chester Disease?

Erdheim-Chester disease is a rare condition in which there is excessive production and accumulation of histiocytes, which normally fight infection. The histiocytes accumulate in the loose connective tissue and bone, making these tissues abnormally thick, dense, and fibrous.

How do members experience Erdheim-Chester Disease?

Top 5 symptoms reported by people with Erdheim-Chester Disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Erdheim-Chester Disease*

Who has Erdheim-Chester Disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 1
40s 2
50s 3
60s 3
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 7
Female 2