Dravet's syndrome
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What is Dravet's syndrome?
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare disorder caused by a genetic mutation in a protein that regulates electrical activity in the brain. People with SMEI experience almost every type of seizure known.
Common symptoms reported by people with Dravet's syndrome
Treatments taken by people for Dravet's syndrome
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Compare treatments taken by people with Dravet's syndrome
Let’s build this page together! When you share what it’s like to have Dravet's syndrome through your profile, those stories and data appear here too.
Got a question about living with Dravet's syndrome? Members in the forum might have the answers.
Who has Dravet's syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 34 say Dravet's syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 11 | |
| 20s | 2 | |
| 30s | 6 | |
| 40s | 5 | |
| 50s | 9 | |
| 60s | 1 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 8 | |
| 20-29 years | 0 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 16 | |
| Female | 22 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 15 | |
| Not Diagnosed | 5 |