Dravet's syndrome
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What is Dravet's syndrome?
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare disorder caused by a genetic mutation in a protein that regulates electrical activity in the brain. People with SMEI experience almost every type of seizure known.
Common symptoms reported by people with Dravet's syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Dravet's syndrome
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with Dravet's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Dravet's syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for Dravet's syndrome (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
Dravet's syndrome
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with Dravet's syndrome, who reported starting treatments within the last 5 years.
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Who has Dravet's syndrome on PatientsLikeMe?
- 46 patients have this condition
- 1 new patients joined this month
- 29 say Dravet's syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 11 | |
| 20s | 3 | |
| 30s | 4 | |
| 40s | 6 | |
| 50s | 7 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 8 | |
| 20-29 years | 0 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 21 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 15 | |
| Not Diagnosed | 5 |
These charts show data from Dravet's syndrome patients who have completed their condition history
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