Down syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Down syndrome?
Down syndrome is a chromosomal abnormality consisting of the presence of a third copy of chromosome 21 in somatic cells and characterized by mental retardation and distinguishing physical features.
Common symptoms reported by people with Down syndrome
Treatments taken by people for Down syndrome

Let’s build this page together! When you share what it’s like to have Down syndrome through your profile, those stories and data appear here too.
Got a question about living with Down syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Down syndrome

Let’s build this page together! When you share what it’s like to have Down syndrome through your profile, those stories and data appear here too.
Got a question about living with Down syndrome? Members in the forum might have the answers.
Who has Down syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 24 say Down syndrome is their primary condition
Age | Proportion | # of patients |
---|---|---|
<20 | 9 | |
20s | 6 | |
30s | 5 | |
40s | 4 | |
50s | 1 | |
60s | 3 | |
70+ | 0 |
Age at first symptom | Proportion | # of patients |
---|---|---|
0-19 years | 6 | |
20-29 years | 0 | |
30-39 years | 1 | |
40-49 years | 0 | |
50-59 years | 0 | |
60-69 years | 0 | |
70+ years | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 8 | |
Female | 22 |
Diagnosis status | Proportion | # of patients |
---|---|---|
Diagnosed | 11 | |
Not Diagnosed | 0 |